Aapke Health Records Aapas mein Baat Kyun Nahi Karte

Har naye doctor ke office mein shuruaat ek jaisi hoti hai. Aap baithte hain. Koi aapko clipboard thama deta hai. Naam, date of birth, insurance. Phir: aap kaun si dawaiyaan le rahe hain? Kaun kaun si surgeries hui hain? Allergies? Family history?

Aap koshish karte hain. Blood pressure ki goli yaad hai, dose nahi. Paanch saal pehle wali surgery likh dete hain, lekin pakka nahi pata ki doosri wali "count" hoti hai ya nahi. Lagta hai kisi antibiotic se allergy hai, ya shayad wo koi aur thi. Family history mein do shabd ya ek khaali line, kyunki sach mein nahi pata ki papa ki dil wali problem form ke "heart disease" mein aati hai ya nahi.

Ye saari jaankari pehle se maujood hai. Wo har us doctor ke computer systems mein hai jinse aap mile, har us hospital mein jahan aap gaye, har us lab mein jisne kabhi aapka blood liya. Medications ek system mein. Surgeries doosre mein. Labs teesre mein. Inmein se koi bhi system aapas mein aise baat nahi karta jo abhi aapko dekh rahe doctor ke kaam aaye. Toh medical record aap ban jaate hain. Aap providers ke beech jaankari apni yaaddaasht mein, phone ke notes app mein, wallet mein rakhe ek mude hue kaagaz pe dhote hain. Ek aise healthcare system mein integration layer aap hain jisne electronic records pe saikdon billion dollar kharch kiye, lekin unhe kabhi saath mein kaam karne laayak nahi banaya.

Medical student ke taur pe maine ek attending ko pandrah minute ki visit document karne mein aath minute lagate dekha. Clinical reasoning likhte hue nahi. Billing compliance ke liye boxes click karte hue. Electronic health records isi ke liye design hue the.

U.S. government ne medical records ko kaagaz se computers pe laane mein $36 billion kharch kiye. Ye kaam kar gaya. Aaj 95% se zyada hospitals electronic records use karte hain. Lekin "electronic" aur "connected" do alag cheezein hain. Har hospital apna system chalata hai, apna database, information code karne ka apna tareeka. Aapke records digital hain, lekin usi building mein atke hain jahan wo bane.

Iske peeche business wajahein hain. Jis health system ke paas aapke records hain, use aapko patient banaye rakhne mein fayda hai. Agar doctor badalne ka matlab hai apni medical history zero se shuru karna, toh aap badalne ki kam sochenge. Government ne systems ko data share karne pe majboor karne ki koshish ki hai. Progress dheema raha hai.

Aapka health data tukdon mein pada hai. Aapke cardiologist ke paas aapke dil ka data hai. Aapke primary care doctor ke paas aapka blood work. Pichhle saal jis urgent care clinic gaye the, uske paas chest X-ray hai. Kisi doosre state ke specialist ke paas aise test results hain jo aur kisi ne kabhi dekhe hi nahi. Har provider ke paas ek tukda hai. Poori tasveer kisi ke paas nahi.

Teen saal pehle ek specialist ne ek medication prescribe kiya. Aapne use lena chhod diya kyunki usse sar dard hota tha. Aapke naye primary care doctor ko us trial ka pata nahi aur wo usi drug class ki milti-julti dawai likh deti hain. Wahi side effects. Agar wo failed trial aapke current doctor ke system mein dikhta, toh wo shuru se hi kuch aur chunti.

Ya phir: do saal pehle ke aapke blood test mein ek number thoda sa elevated tha, lekin "normal" range mein hi. Is saal ke test mein wahi marker abhi bhi technically normal hai, lekin pehle se zyada. Agar aapki doctor dono results saath saath dekh paati, toh upar jaata trend notice karti aur jaanch karti. Iski jagah wo sirf aaj ka result dekhti hain, normal maan leti hain, aur aage badh jaati hain. Ek panapti problem pe kisi ki nazar nahi jaati, kyunki koi dekh hi nahi paaya ki numbers kis taraf ja rahe the.

Ye koi kabhi kabhaar hone wali baatein nahi hain. Studies ka andaaza hai ki U.S. mein order hone wale 30% lab tests un tests ke duplicate hote hain jo haal hi mein kahin aur ho chuke hain. Har bekaar test mein paisa lagta hai, time lagta hai, aur kabhi kabhi asli risk bhi hota hai, khaas taur pe radiation exposure wali imaging mein ya un patients mein blood draw jinki nas mushkil se milti hai.

Progress ho rahi hai. Kai states mein health information exchanges hain. MyChart jaise patient portals se aap apne records dekh sakte hain. Federal government interoperability requirements pe aur zor de rahi hai. Dheere dheere pipes ban rahe hain.

Lekin data jodne se sirf aadhi problem solve hoti hai. Jab aapki nayi doctor ko pichhle hospital se 50 pages ka record dump milta hai, toh 15 minute ke appointment mein use poora padhne ka time nahi hota. Wo medication list pe nazar daalti hain, bade diagnoses check karti hain, aur aage badh jaati hain. Aapke kidney function ka halka sa trend. Teen saal pehle fail hua medication trial. Wo imaging finding jo note toh hui lekin jiska follow-up kabhi nahi hua. Ye sab technically record mein hai, itni jaankari ke neeche daba hua jise koi bhi insaani clinician milne wale time mein poora process nahi kar sakta.

Aapke records har us provider ke beech perfectly connected ho sakte hain jinse aap kabhi mile, aur asli problem phir bhi rahegi. Jo cheez abhi aapki health ke liye matter karti hai, wo shayad page 38 pe ho, aur use dhoondhne ka time kisi ke paas nahi.

Chroneme aapke health data ko providers aur time ke paar samajhta hai. Jab aapke primary care doctor ke labs, aapke cardiologist ki medication list aur pichhle saal ki urgent care visit ek saath hon, toh system in sab ko saath mein interpret karta hai. Wo aise trends aur connections dhoondhta hai jo har source ko alag se dekhne pe nazar hi nahi aate.

Practice mein iska matlab hai ki system notice kar sakta hai ki do alag institutions mein hue labs ke hisaab se aapka kidney function teen saal se dheere dheere gir raha hai. Wo flag kar sakta hai ki ek doctor ki prescribe ki hui medication doosre doctor ki manage ki ja rahi condition se interact karti hai. Wo pakad sakta hai ki pichhle chhe mahine mein aapke vital signs ka pattern kisi aisi cheez ke early stages se match karta hai jiska abhi diagnosis nahi hua.

Jo data health systems share nahi karna chahte, wo hum unse share nahi karwa sakte. Records ko alag-alag silos mein rakhne wale business aur political incentives asli hain, aur wo kisi bhi technology company ki pahunch se bahar hain. Lekin ek baar data accessible ho jaaye, toh hum use clinically aise useful bana sakte hain jaise sirf raw data transfer nahi kar sakta. Interoperability ki koshishein jahan ja rahi hain aur patients ko unhe asal mein jahan pahunchna chahiye, unke beech yahi gap hai.

Aapko apna health record khud nahi banna chahiye. Aapki health ki jaankari aapke saath chalni chahiye, organized aur samjhi hui, taaki aap jis bhi provider se milein, visit ke pehle minute se uske paas poori tasveer ho. Hum isi ki taraf kaam kar rahe hain.