Aap ke Health Records Aapas mein Baat Kyun Nahi Karte

Har naye doctor ke office mein shuruat ek jaisi hoti hai. Aap baithte hain. Koi aap ko clipboard thama deta hai. Naam, tareekh-e-paidaish, insurance. Phir: aap kaun si dawaiyan le rahe hain? Kaun se operation hue hain? Koi allergy? Khandan mein kisi ko koi bimari?

Aap koshish karte hain. Blood pressure ki goli yaad hai, dose yaad nahi. Paanch saal pehle wali surgery likh dete hain, lekin pakka nahi pata ke doosri wali "ginti" mein aati hai ya nahi. Lagta hai kisi antibiotic se allergy hai, ya shayad woh koi aur thi. Family history mein do lafz likhe jate hain ya line khali reh jati hai, kyun ke sach poochein to aap ko yaqeen nahi ke aap ke walid ki dil ki bimari form ke "heart disease" wale khane mein aati hai ya nahi.

Ye sari maloomat pehle se maujood hai. Har us doctor ke computer system mein jis ke paas aap gaye, har us hospital mein jahan aap ka aana hua, har us lab mein jis ne kabhi aap ka khoon liya. Dawaiyan ek system mein. Surgeries doosre mein. Labs teesre mein. In mein se koi system doosre se aisi koi baat nahi karta jo is waqt aap ko dekhne wale doctor ke kaam aaye. To medical record aap khud ban jate hain. Aap ye maloomat ek provider se doosre tak apni yaadasht mein, phone ki notes app mein, ya batwe mein tah kiye kaghaz par uthaye phirte hain. Aap us healthcare system ki integration layer hain jis ne electronic records par sainkron billion dollar kharch kiye lekin unhein kabhi aapas mein jor kar kaam karne layak nahi banaya.

Medical student ke tor par maine ek attending ko pandrah minute ki visit document karne mein aath minute lagate dekha. Clinical reasoning nahi likh rahe the. Billing compliance ke liye boxes click kar rahe the. Electronic health records isi kaam ke liye design hue the.

U.S. government ne medical records ko kaghaz se computers par lane ke liye $36 billion kharch kiye. Ye kaam ho gaya. Aaj 95% se zyada hospitals electronic records use karte hain. Lekin "electronic" aur "connected" do alag cheezein hain. Har hospital apna system chalata hai, apna database, information code karne ka apna tareeqa. Aap ke records digital hain, lekin usi building mein phanse hue hain jahan bane the.

Is ki karobari wajahein hain. Jis health system ke haath mein aap ke records hon, usay aap ko apna patient banaye rakhne mein faida hai. Agar doctor badalne ka matlab apni medical history zero se shuru karna ho, to aap ke badalne ka imkaan kam hai. Government ne systems ko data share karne par majboor karne ki koshish ki hai. Pesh raft ahista rahi hai.

Aap ka health data tukron mein maujood hai. Cardiologist ke paas aap ke dil ka data hai. Primary care doctor ke paas aap ka blood work. Pichle saal jis urgent care clinic gaye the, us ke paas chest X-ray hai. Kisi doosri state ke specialist ke paas aise test results hain jo kisi aur ne kabhi dekhe hi nahi. Har provider ke paas ek tukra hai. Poori tasveer kisi ke paas nahi.

Teen saal pehle ek specialist ne ek dawai likhi. Aap ne woh chhor di kyun ke us se sar dard hota tha. Aap ke naye primary care doctor ko us aazmaish ka pata nahi, aur woh usi drug class ki milti julti dawai likh deti hain. Wahi side effects. Agar nakam aazmaish aap ki maujooda doctor ke system mein nazar aati, to woh shuru se hi kuch aur chunti.

Ya phir: do saal pehle aap ke blood test mein ek number thora sa zyada tha, lekin "normal" range ke andar. Is saal ke test mein wahi marker ab bhi technically normal hai, lekin pehle se zyada. Agar aap ki doctor dono results saath saath dekh sakti, to upar jata trend notice karti aur tehqeeq karti. Is ke bajaye woh sirf aaj ka result dekhti hai, normal samajhti hai, aur aage barh jati hai. Ek banta hua masla nazar se reh jata hai kyun ke koi dekh hi nahi saka ke numbers kis taraf ja rahe the.

Ye koi kabhi kabhar ke waqiaat nahi. Studies ka andaza hai ke U.S. mein order hone wale 30% lab tests un tests ka dohrao hain jo haal hi mein kahin aur ho chuke hain. Har ghair-zaroori test ka paisa lagta hai, waqt lagta hai, aur kabhi kabhi asal khatra bhi hota hai, khaas tor par radiation wali imaging mein, ya un mareezon mein jin ki nas se khoon nikalna mushkil ho.

Pesh raft ho rahi hai. Kai states mein health information exchanges maujood hain. MyChart jaise patient portals se aap apne records khud dekh sakte hain. Federal government interoperability ki sharait par zyada zor de rahi hai. Ahista ahista pipes bichhai ja rahi hain.

Lekin data jor dene se sirf aadha masla hal hota hai. Jab aap ki nayi doctor ko pichle hospital se 50 safhon ka record mil jata hai, to 15 minute ki appointment mein us ke paas sab parhne ka waqt nahi hota. Woh medication list par nazar daalti hai, bari diagnoses check karti hai, aur aage barh jati hai. Aap ke kidney function ka mamooli sa trend. Teen saal pehle nakam hone wali dawai ki aazmaish. Imaging ki woh finding jo note to hui lekin us ka follow-up kabhi nahi hua. Ye sab technically record mein hai, lekin itni maloomat ke dher mein dabba hua ke koi insani clinician maujood waqt mein usay poori tarah process nahi kar sakta.

Aap ke records har us provider ke saath bilkul theek jure hon jis ke paas aap kabhi gaye, tab bhi asal masla wahin rahega. Is waqt aap ki sehat ke liye jo baat ahem hai woh shayad safha 38 par ho, aur kisi ke paas usay dhoondne ka waqt nahi.

Chroneme aap ke health data ko providers aur waqt ke paar samajhta hai. Jab aap ke primary care doctor ke labs, cardiologist ki medication list aur pichle saal ki urgent care visit ek saath hon, to system in sab ko mila kar samajhta hai. Woh aise trends aur rishte dhoondta hai jo har source ko alag alag dekhne par nazar na aate.

Amal mein is ka matlab ye hai ke system notice kar sakta hai ke do alag institutions mein hue labs ke mutabiq aap ka kidney function teen saal se ahista ahista gir raha hai. Woh flag kar sakta hai ke ek doctor ki likhi dawai us condition se interact karti hai jise koi doosra doctor manage kar raha hai. Woh pakar sakta hai ke pichle chhe mahine mein aap ke vital signs ka pattern kisi aisi cheez ke ibtidai marahil se mel khata hai jis ki abhi diagnosis nahi hui.

Hum health systems ko woh data share karne par majboor nahi kar sakte jo woh share nahi karna chahte. Records ko alag alag khanon mein band rakhne wali karobari aur siyasi wajahein asal hain, aur kisi bhi technology company ki pohanch se bahar hain. Lekin jab data tak rasai ho jaye, to hum usay is tarah clinically kaam ka bana sakte hain jaise sirf data transfer nahi bana sakta. Interoperability ki koshishein jis taraf ja rahi hain aur mareezon ko asal mein jahan pohanchne ki zaroorat hai, darmiyan ka khala yahi hai.

Aap ko apna health record khud nahi banna chahiye. Aap ki sehat ki maloomat tarteeb aur samajh ke saath aap ke peeche peeche chalni chahiye, taake jis bhi provider ke paas aap jayein, visit ke pehle minute se us ke paas poori tasveer ho. Hum isi ki taraf kaam kar rahe hain.